Wolfram Syndrome UK Adult Support Worker
Wolfram Syndrome UK (WSUK)
WSUK is a small national charity based in West Sussex that supports children, young people
and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an
ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes
mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK
provides current, accurate and family-friendly information, raises awareness of WS among
health professionals and the public, and helps to fund WS research. For further information
WSUK Adult Support Worker Role
WSUK is seeking a part-time adult support worker (2 days, per week 0.4 FTE, £9k-£11k per
annum). This home-based role will provide support to WS affected adults and their families
to help improve the quality of their lives. Through liaising with professionals, external or
advocacy organisations, this role will help facilitate access to the services to which WS
affected adults and their families are entitled. The support worker will help adults and their
families to increase their confidence and independence in living with their condition. This
role will also act as an important point of contact for WS affected adults, providing advice
and support in confidence. As this is a new role, there is opportunity for the successful
candidate to develop the role to best meet the on-going needs of WS affected adults and
Skills and experience
Applicants should have several years’ experience in a similar position, working with people
affected by sensory loss, long-term medical/genetic condition, or disability. Applicants
should also have a strong desire to improve the lives of people living with a long-term
condition or disability and be confident in talking with people with a range of abilities and
diverse cultural backgrounds.
Applicants should have experience in homeworking and be confident in working independently on their own initiative and in managing conflicting priorities.
Some limited UK travel will be required (particularly to attend adult NHS WS multi-disciplinary clinics in Birmingham, and the annual WS conference). Participation in regular trustee meetings via zoom (evenings) will also be expected. A DBS check will be required.
To apply, please email/ send your cv to email@example.com by July 2nd, 2021
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