21 hours per week
6 months contract
£18-20k pro rata
Lived experience of Duchenne desirable criteria
Action Duchenne knows that there is only one person who understands what a Duchenne parent is going through, and that is another Duchenne parent. The same applies to young people and adults living with Duchenne muscular dystrophy.
Focussing on the complete marketing and communications life-cycle of new, fully funded support projects, the Digital Marketing Coordinator will be responsible for all marketing tasks involved in creating and growing peer-to-peer support groups for Duchenne Grandparents, Duchenne Parents/Caregivers, young people and adults living with Duchenne.
We offer a competitive salary, completely flexible working hours, home-working and an innovative and supportive working environment.
Action Duchenne is a UK charity which provides life-changing support to children, young people and their families living with Duchenne muscular dystrophy. We are establishing at least four closed peer-to-peer support groups of young adults, parents/carers and grandparents living with Duchenne over the next 2 months.
These groups will offer support and training in life skills, a chance to take part in activities that would not usually be available to our young people and adults, and at the same time would provide parents/carers and grandparents with greater perceived empathy and respect that peer supporters are seen to have for the individuals they support.
The peer-to-peer support for all of these groups will have an immense effect on helping to navigate the increasing mental health issues and questions created during the lockdown period.
This is an opportunity for you to make a significant contribution within our small yet vital patient organisation. Responsible to and supported by the central Marketing Officer, the Digital Marketing Coordinator will;
Young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges in their foreshortened lives. Some are extremely clinically vulnerable to COVID-19 because the condition reduces lung function and immune-suppressant drugs are used to slow disease progression. Young people, adults and families are in extended lockdown, even though inactivity can mean they suffer irreplaceable muscle-loss.
Parents with children and young people living with Duchenne are feeling not only the physical but also psychological pressure of lockdown. Home-schooling and the social isolation of being away from peers, friends and family is often compounded in children with Duchenne, since the prevalence of ADHM, ADD and Autism are comorbidities of the condition.
You can play a vital role in tackling social isolation and increasing mental well-being through coordinating the marketing and communications life-cycle for the vital changing peer-to-peer support projects.
Duchenne muscular dystrophy affects around 2,500 people in the UK, with the vast majority being male. Mutations, or changes, in the dystrophin gene stop the body making a vital muscle protein and over time this causes muscles to weaken and waste away.
The first signs of Duchenne happen in the early years of life and it is usually diagnosed around 4 years old. The condition reduces life expectancy to an average of approximately 30 years and it has no cure.
Action Duchenne has a simple vision: a world where lives are no longer limited by Duchenne muscular dystrophy.
While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.
The ideal candidate may have experience in the following; Social Media Manager, Marketing Manager, Digital Lead, Digital Coordinator, Digital Marketing Assistant, Charity Digital Marketing, Online Marketing, Marketing Executive, Digital Content, Ecommerce, Email Marketing Executive, Project Management, Project Delivery.
Send us your CV and cover letter, explaining why you are the best candidate for Digital Marketing Coordinator. Successful applicants will be invited to attend a face to face interview via Zoom which will include a written task.
We appreciate your application and will only be contacting successful candidates, thank you for understanding.
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